I received a letter telling me I have been granted disability benefits until March 2029. However they can start the reassessment process a year before that date, and if the assessment process is quick and I lose again, my benefits will be stopped again as soon as I lose, even if it’s before 2029. So I only have guaranteed payments until March 2028. Two years before this could all start again. This is despite the fact that I had letters of support from my GP, mental health therapist, a social worker and my landlady all confirming my disabilities, the amount of help I need and the fact my condition isn’t likely to improve much.
On the plus side at least I didn’t have to have another assessment. I sent in so much medical evidence that they judged me on the evidence alone - confirmation of my conditions and how they affect me from hospital consultants and the physiotherapist, copies of medical records, letters from people who know me like those already mentioned and print outs of my prescriptions, along with a statement I wrote about myself and how much help I need.
But I’m so worried about the fact that I only have two years. I had been hoping get the maximum 10 years, and to quit the medical treatments and medications that don’t help me and just cause me side effects and stress. But with only two years to go until the next assessment I feel I have to keep attending unwanted medical appointments and taking unwanted drugs or I’ll fail the next assessment as they’ll use it against me. Plus the fact that the government keeps threatening to make it more difficult to qualify for disability in the future, and says they are slashing the amount in a few years.
I want to thank everyone here profusely for the incredible amount of help I have received - moral support, friendship, food vouchers, money and physical items sent through the post. I can’t imagine how I would have survived all this time without you. I was so desperate at my financial situation I was actually on a suicide forum trying to find someone to kelp me un@l1v£ myself, and that is how I discovered hexbear/lemmygrad - someone on there told me about it and suggested I ask for help. I thought I’d be lucky to get one meal, I never imagined you would all support me so much for over a year.
There have been a couple of people here during this time who have spent weeks teasing me with offers of help that never came and seemed to enjoy doing it, but most people have been wonderful. Prior to finding this place I actually asked Christian organisations for help and was rudely turned away. The food bank is a nightmare and many only allow you to go three times every 6 months. Macmillan stopped giving grants to cancer patients and my local council stopped the household support fund, I had literally nowhere else to turn.
So, I now have a (low) income for the next two years. It’s still going to be a struggle - along with typical expenses like rent/utilities/food/transport etc I have additional expenses like buying things I need for surgeries and other medical stuff that the NHS doesn’t provide and if anyone ever wants to keep helping with supermarket gift cards to make it less of a struggle I would be so grateful, but even if no-one is able or willing to do that I really appreciate everything and wish I could repay it somehow.
Thank you all, you’re the best people I’ve ever known.
Glad you got some respite from this still process even if only for a short time.
I had to fight for my wife to receive some assistance and whilst during the struggle I felt hopeless and defeated by all the bureaucracy, things did eventually fall into place.
I argued for a home visit for the physical assessment and the assessor during the visit was trying to get my wife to stand on one leg. My wife is also deaf so we had an interpreter. I didn’t help at all, so wife had to perform the steps independently. When she couldn’t even get up to stand without the interpreter holding her up, the assessor kept asking her to lift a leg off the ground and couldn’t. Obviously straining physically whist trying, in the end the interpreter had to interject with “can’t you see, she can’t do it?!”. The assessor honestly looked like she didn’t know what to do. Wife really couldn’t do any of the her assessment steps and she looked lost because of it.
She got an indefinite claim with a renewal in 5 years, but it’s been 8 and we haven’t heard anything more. I hope you get similar!
Thank you. Mine isn’t an indefinite claim though, it’s final date when payments must stop is March 2029, and they could stop any time after March 2028 depending on how soon after that I get reassessed. The only way to avoid the payments stopping is to win another assessment before March 2029. What country are you in?
I’ve had similar issues during assessments, making me perform like a monkey, trying to make me stand on one leg, bend over etc. I think the worst was when I was explaining to the assessor that I had lost some vision in a stroke and am now partially sighted. I explained how it makes it dangerous for me to cross roads etc without help. She asked if I wear glasses, and I said yes because my remaining vision is short sighted. She asked if that makes the missing vision come back. I said no, but she wrote in the assessment paper that I can see perfectly when I wear glasses. She also suggested that when I’m out I should constantly rotate my head around in a circle to give me a full range of vision - voila I’m therefore not short sighted any more and this was used as part of the reason to deny my claim.
In from the UK and your story resonates. We had our claim denied for falsehoods. Claiming a woman with cerebral palsy can walk 100m when she came to the assessment in a wheelchair.
We had 6 month assessments for 4 years until we got what we have now. Luckily now I’m in a position where I can provide so it’s not the end of the world if things change. But it hasn’t always been like this. I had to quit work to care full time. The work from home shift post COVID means I can WFH now and be there for her still.
Since the conservatives started the trend of attacking those with disabilities in some distopian cost cutting scheme, it has been an uphill battle.
Sorry to hear you’ve gone through it too. I’ve actually found that Labour are more hateful to us than the conservatives, I mean they’re both awful to the disabled but Labour seem to make it even harder to get any help and they are the ones who started the Wok Capability Assessment.
this makes me so happy to read, im glad that hb and grad have been of help to you during such horrible times. with the greens doing so well recently i think there could be hope that you wont have to go through this again if they manage to take control of the government. still, please feel free to keep asking for help, dont ever hesitate to ask for help in the future. and i think being a wonderful member of the community is all the repayment anyone here needs :)
Thank you so much, this is the most welcoming and friendly and accepting place I’ve ever found.
yeah, this is the only place on the internet ive ever felt comfortable commenting on besides like discord servers, i probably had less than 200 public comments across the rest of the internet when i first found this place and then within a year i had well over 1k comments on grad alone not to mention hb. not as active as i used to be but this place still feels like my internet home :D
as an aside, i will admit i saw your comment in the disabled megathread thread about the rude person who told you “to stop letting yourself rot” just now and perused your profile to find it so i could report comment and in the process saw your comment about wanting to watch outlander but not being able to afford the subscription, would you want any help in pirating the show?
It’s starting today in the UK, on amazon MGM, one episode a week, but I’m really bad with technology, I feel I have brain fog and cognitive impairment from my illness and medical treatments and struggle to do things other people find basic. Now I have an income I’ll probably just wait until all the episodes are up and then pay for one month, but thanks.
it’s really quite simple you just need to make sure you have an adblocker and then visit one of the websites listed with a star on this website: https://fmhy.pages.dev/video
Amazon just offered me a deal of 3 months for 99p a month so I think I’ll just do that, but thanks.
i hope somehow things get better, i wish i could help you comrade, life is hard, but we go on
Thank you.
I’m so happy for you! Congratulations! I’m so sorry I’ve not been able to help recently.
Thank you, and that’s OK, I have always remembered and appreciated the help you’ve given me.
🫶
This mean you can accept cash now, or still playing it safe?
Not too regularly, because they are still going to be regularly checking claimants bank accounts, but I could accept occasional gifts if they are labelled as gifts (I’m not allowed to earn money.)





