I waddled onto the beach and stole found a computer to use.

🍁⚕️ 💽

Note: I’m moderating a handful of communities in more of a caretaker role. If you want to take one on, send me a message and I’ll share more info :)

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Joined 3 years ago
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Cake day: June 5th, 2023

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  • So they don’t explicitly mention “chronic” Lyme disease in the video, and I couldn’t find any other articles from looking up the names mentioned, but it does sound like that’s what is being talked about here.

    What I would be curious about is if these patients got the antibody test. If they didn’t, that seems like a relatively easy policy fix. Bacteria can spread to other countries and go undetected, and the test isn’t that invasive compared to the peace of mind it would give patients. Same

    However if they did get the test and it came back negative, then it gets more complicated. Doctors don’t want to put someone on treatment for something that can’t be detected. Every medication has side effects and you would end up harming someone without evidence of a benefit. Where it gets messy is when people go for “diagnosis” or “treatment” abroad.

    I did actually find this from last October

    https://www.health.gov.au/sites/default/files/2025-11/australian-government-response-to-the-senate-community-affairs-references-committee-report-access-to-diagnosis-and-treatment-for-tick-borne-diseases.pdf

     Overview
    
    The Australian Government appreciates the opportunity to respond to the Senate
    Community Affairs References Committee list of recommendations on the Access to
    diagnosis and treatment for people in Australia with tick-borne diseases. The Government
    thanks the Committee and the various stakeholders for their valuable and thoughtful input
    to the Inquiry.
    The Government acknowledges the concerns of patients who are facing issues accessing
    diagnosis and treatment with tick-borne illnesses. In early 2013, the Department of Health,
    Disability and Ageing began engaging with patients, medical practitioners, and advocacy
    groups to discuss concerns about Lyme disease. In 2016, the department engaged and
    addressed the Senate Inquiry recommendations into Growing evidence of an emerging tick-
    borne disease that causes a Lyme-like illness (2016 Inquiry) through a range of measures
    such as public education materials, research and guidance for medical practitioners. As a
    result, the department has gained a deeper appreciation and growing concern for those
    Australians experiencing issues relating to tick-borne diseases.
    This response addresses the specific recommendations raised in the current Senate
    Committee's Report. The Government remains open-minded about the cause of the various
    complexes which manifest as a range of chronic debilitating symptoms. The best outcome
    for patients and health practitioners is to not draw conclusions based on poor levels of
    evidence, but to consider each patient thoroughly in a multidisciplinary medical approach
    that makes the best use of clinical expertise and available diagnostic skills and technology.
    The Government remains engaged with the patient and medical community to continue to
    find, share and understand the evidence associated with tick-borne diseases. The
    Government hopes its continued work with clinical medicine and research communities will
    result in answers and relief for patients and their families
    

  • Do you have an article about the case you’re talking about?

    There is a difference between Lyme disease and chronic Lyme disease. My guess is that this case has something to do with that difference.

    https://en.wikipedia.org/wiki/Lyme_disease

    Lyme disease, also known as Lyme borreliosis, is a tick-borne disease caused by species of Borrelia bacteria, transmitted by blood-feeding ticks in the genus Ixodes.[4][9][10] It is the most common disease spread by ticks in the Northern Hemisphere.[11][8] Infections are most common in the spring and early summer.[4] Infection is treatable with antibiotics. Most treated patients experience a full recovery. For some patients recovery may not be immediate or complete, resulting in long-term effects.[12] Early detection and prompt treatment are associated with more favorable outcomes.[13]

    Diagnosis is based on a combination of symptoms, history of tick exposure, and possibly testing for specific antibodies in the blood

    https://en.wikipedia.org/wiki/Chronic_Lyme_disease

    Despite numerous studies, there is no evidence that symptoms associated with CLD are caused by any persistent infection.[4] The symptoms attributed to chronic Lyme are in many cases likely due to fibromyalgia or chronic fatigue syndrome.[5][6] Fibromyalgia can be triggered by an infection, and antibiotics are not a safe or effective treatment for post-infectious fibromyalgia.[7] Fatigue, joint and muscle pain are also experienced by a minority of people following antibiotic treatment for Lyme disease.[3]

    A number of alternative health products are promoted for chronic Lyme disease,[8] of which possibly the most controversial and harmful is long-term antibiotic therapy, particularly intravenous antibiotics.[9][10] Recognised authorities advise against long-term antibiotic treatment for Lyme disease, even where some symptoms persist post-treatment.[11][12][13]

    In the United States, after disciplinary proceedings by state medical licensing boards, a subculture of “Lyme literate” physicians has successfully lobbied for specific legal protections, exempting them from the standard of care and science-based treatment guidelines. Such legislation has been criticised as an example of “legislative alchemy”, the process whereby pseudomedicine is legislated into practice.[14][15][16] Some doctors view the promotion of chronic Lyme disease as an example of health fraud.[17]

    Chronic Lyme disease is distinct from untreated late-stage Lyme disease, which can cause arthritis, peripheral neuropathy and/or encephalomyelitis. Chronic Lyme disease is also distinct from post-treatment Lyme disease syndrome (PTLDS) when symptoms linger after standard antibiotic treatments.[18][19] PTLDS is estimated to occur in less than 5% of people who had Lyme disease and were treated.[20] In contrast to these recognized medical conditions, the promotion of chronic Lyme disease has been accused of being health fraud.[17] In many cases there is no objective evidence that people who believe they have chronic Lyme have ever been infected with Lyme disease: standard diagnostic tests for infection are often negative.[2][21]


  • Nice, I had no idea

    I tried out Fladder, Moonfin, and Wholphin

    • Fladder does load, but it crashes on certain pages for me. My guess is that my hardware isn’t powerful enough to handle something that it’s trying to do
    • Moonfin and Wholfin are both beautiful with an intuitive UI. Between the two, I liked Wholfin the best. It has a preview when customizing the home page, which is very helpful compared to the back and forth guess and test with the other ones. I also prefer it’s UI and default settings over the others

    I replaced Findroid with Wholphin on ours



  • Some cool details

    Scientists want to know how whales cooperate and socialize in the wild, but it’s tough to study this in animals that spend most of their time underwater. There are just a handful of sperm whale birth records from the past 60 years, and all are anecdotal accounts or from whaling boats.

    Several years ago, researchers were studying whale communication on a boat off the Caribbean island of Dominica when they noticed something odd. Eleven whales — most of them female — surfaced, their heads facing one another, and started thrashing and diving above and below the water. The scientists immediately took out drones and microphones to capture the event.

    The full delivery took about 30 minutes. For hours afterward, pairs of whales held the baby above the water until it was able to swim.

    After observing the birth, the scientists created software to analyze exactly what was going on. They chronicled the sights and sounds in two studies published Thursday in the journals Scientific Reports and Science.

    What struck the researchers was how many mother, sister and daughter whales united to support the new calf, even ones that weren’t related. Sperm whales live in close-knit, female-led societies, and the new observations show how those dynamics persist in the animals’ most significant and vulnerable moments.



  • Otter@lemmy.catoComic Strips@lemmy.worldEnough Arms
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    2 days ago

    It might be the thesis, but it definitely raises discussions on why some protests work and others don’t. It’s true that a one and done protest is easy to ignore. That doesn’t mean all protests are ineffective.

    Historically, protests were effective when they were the signal that people were unhappy, and that if something didn’t change, people would take further action.

    So I’m order for protests to be more effective:

    • they need better organization and consolidation instead of being distributed
    • they need a clear set of actionable demands, so that protestors know when they need to ratchet up to the next level of escalation
    • they need to have agreed upon levels of escalation that will be followed by those attending the protest. That could include general strikes, focussed boycotts, focussed civil disobedience, etc.

    Simplifying it down to “🔫 or nothing” is just as silly as the octopus protest, in that people need to find the right set of actions for each situation.

    As for the US specifically, I don’t see what an immediate armed revolution would accomplish.



  • I think if someone is interested in the topic, then they will be better equipped to navigate tech products if they’ve learned about what’s going on under the hood. Same as health/science education for navigating pop science, or mechanical knowledge for navigating scammy car mechanics.

    I agree on some of the other points though. I would not use any of the random chat apps that these new accounts have been posting